Pediatric Patient Reported Outcomes Study Group

The Pediatric Patient Reported Outcomes (PRO) study group is leading CPRN’s efforts in pediatric PRO surveys through our soon to be launched patient-powered registry. The group works with the pediatric community panel to get feedback on priorities for PRO studies and leverages patient advocates Paul Gross and Michele Shusterman as active participants in the study team.

Leader: Paul Gross (interim)

Study Group Participants include:

Amy Bailes, P.T., Ph.D., Cincinnati Children’s Hospital
Mary Gannotti, P.T., Ph.D., University of Hartford
Susan Horn, Ph.D., University of Utah
Jacob Kean, Ph.D., University of Utah
Aga Lewelt, M.D., University of Florida – Jacksonville
Unni Narayanan, M.D., M.Sc., SickKids
Brandon Roque, M.D., Children’s of Alabama
Benjamin Shore, M.D., M.P.H., Boston Children’s Hospital
Michele Shusterman, CP Now Foundation
Jilda Vargus-Adams, M.D., M.P.H., Cincinnati Children’s Hospital